Tell us about this charity?
This charity is about raising funds for people suffering from EB, Epidermolysis Bullosa is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
Why is it important to you?
Back in 2016 I saw a notification about The Cotton Ball that was to be held later in the year, at the Adelaide Convention Centre. I didn’t know anything about EB and did a little research and soon realised what a horrible disease it is and just wanted to get involved and help out if I could so I contacted the organisers and offered our services and they accepted, they are holding another ball this year at The Convention Centre and we were very happy to be asked again to help out and immediately said yes.
Photos of the 2016 Cotton Ball can been seen here ;)
Tell us about their ball and the vibe on the night?
The Ball is a real buzz to be involved in, it is a fun night of eating and drinking with special guests and lots of entertainment and money raising but the real meaning of the night is not lost on the hundreds of guests and that is to raise money to support sufferers of this debilitating disease.
Why do you love being involved?
I love being involved because it gives me a feeling of helping and supporting those less fortunate that myself, albeit in a small way.
Mark was absolutely amazing.
He captured my wedding day so perfectly.
I was blown away with the quality and amount of photos we received.
Mark was extremely flexible adding an additional 3 hours of time at short notice.
Photos were edited and available much faster than expected.